STIG_06LeadingAddressing Stigma and Discrimination
Develop Patient-Led Approaches to Combat Stigma
Summary
Engage patients with lived experience to shape inclusive policies and reduce stigma.
Supporting information
Traditional anti-stigma training often fails to create lasting change. Patient-led approaches drawing on lived experience of stigma create more powerful learning that transforms attitudes and behaviours.
Approaches to implementation:
- Recruit patients with lived experience of health-related stigma
- Support them to co-design anti-stigma initiatives
- Create safe spaces for sharing stigma experiences
- Develop staff trainign that is patient-led
- Use creative methods including storytelling and arts
- Ensure patient leaders are properly compensated
- Evaluate impact on staff attitudes and patient experience
- Build network of anti-stigma champions
Key benefits: Creates authentic, powerful anti-stigma interventions that transform practice culture through the authority of lived experience.
Resources
- Trauma informed co-production
- Experience-Based Co-Design (EBCD) Toolkit
- Experienced-based co-design toolkit (point of care foundation)
- Co-production guide (HEEC)
- BMA patient and public involvement - a tool kit for GPs
- NHS Tameside and Glossop co-production guide and toolkit
- Co-production: what it is and how to do it
- NHSE co-prodiction resource toolkit
- Co-production guide for Northern Ireland
Links open on other organisations' websites.